Health- challenged
It has been a very rough week in my Gastroparesis world... so many of my friends, people near and dear to my heart are having a very rough time right now.
One is facing unrelenting rib pain, a possible fracture (?) from reduced bone density from malnutrition and the multiple medications she must take... One is having her stomach removed tomorrow in an attempt to be able to get nutrition into her poor body... One is in the hospital on oxygen struggling so hard... One's husband lost his job and they are about to lose their insurance (something I know about all too well) and this is only a sampling... so many I love battling an Invisible Illness that more should know about because it is not rare at all... more people have this than other conditions out there that have much better awareness.
You would think that with this going on they would be focusing inward, thinking only of themselves... but no... they are reaching out and offering support and comfort to others and putting others first.
These are the People of Invisible Illness... these are the sufferers of Gastroparesis and every single day they inspire me in so many ways.
Teens with Gastroparesis are making Awareness videos and posting them on YouTube (http://www.youtube.com/watch?v=I7kt3CFTDm4&feature=uploademail http://www.youtube.com/watch?v=a1w0V-hMIuk&feature=share http://www.youtube.com/watch?v=aCrfgcyO2NE&feature=share are just a few of them) Take a minute to watch them and you will see what bravery is.
On the "home front", I am struggling with the pain and the battle to get my fluids in. I try to get at least 600ml in every day (just over 20 ounces) but in the past 24 hours I have only gotten 9 ounces in... not good since I am always mildly dehydrated and can't risk tipping that teeter totter beyond that because I can't go to the ER (the only one I can go to is over 90 miles away and I do not have the gas money) for fluids and once it reaches the moderate dehydration stage (which I am getting close to) it is much harder to get the fluids I need in.
The pain is bad... and every once in a while there is a stab that comes out of nowhere that I cry out from, making my Service Dog (who, by weird chance, also has Gastroparesis) Loki race in circles growling trying to find whatever it is that is making his Mom yelp. Laughing hurts, but I can't help but laugh when he wants to take on Gastroparesis for all of us!
On the Sapling front... they are still green and alive... my husband has been keeping them watered and adding mild fertilizer and I hope that they get in the ground by the weekend.
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