Wednesday, August 24, 2011

Mood- very sad
Health- reactive

     Today I learned that a friend I made on Facebook, a woman that I have never met in person, a woman in Perth City, Western Australia, lost her battle with Gastroparesis on Friday, August 19, 2011.

     Jules was a Mother and a Wife, only 44 years old and she kept fighting for her kids, but her poor body just could not fight any longer.

     She was a Beautiful woman inside and out, always ready with a smile and a joke no matter how bad she was feeling herself... she loved openly and freely and was loved by so many people around the world.

     Last Christmas she was in the Hospital and could not send out Christmas cards in a large exchange going on but loved all the cards she got and was so excited for this year, she could not wait to send out cards... and I have decided that all cards I send out this year I will sign her name to as well.  She will send out 'Crissy" cards (as she called them) and when people ask me "who is Jules?" I will tell them about her and about the horrible condition we share that stole her like a thief from us.

     This is why I am fighting so hard for Awareness and doing this daily blog no matter how I feel... because we need Awareness so badly.  We need better treatments and a cure...

     We are saying too many hard 'goodbyes'... earlier this year we said goodbye to Roxanne, a beautiful teenager who became septic from her TPN (IV Nutrition) line, a line she had to have for nutrients and to survive... but can and does cause infections.

     Then you look at the Caldwells... where their son, their precious 2 year old son, has been ripped from their arms because of a lack of awareness of his health condition by the Mississippi Department of Human Services and are battling for their lives to bring their family back together.

     These are real people... they are people who laugh, cry, sing and die... they should not be invisible, but they are.