Sunday, August 14, 2011

Sunday, August 14, 2011

Mood- dragging
Health- flagging


After pushing pushing pushing myself to try to keep active (as active as I can be from bed)  my body is pushing back and telling me that I have to either start listening to it when it says 'rest' or it will take matters out of my hands and do what it wants anyway.

What does this mean?

It means being QWERTY faced, people... in other words you fall asleep on the computer rather than at it and wake with an imprint of the keyboard on your face!

My body has been dropping small 'hints' over the past week... muscle tremors that shake the whole bed yet I cannot tell what muscles are jumping... Dumping Syndrome deciding to flare when I take one sip too many of a drink (which can mean more than one sip at a time)... Alchalasia (a swallowing disorder) where liquids 'lock' feeling like a cue ball stuck just above the sternum (painful)... brain fog... increased nausea and more.

Living with an Invisible Illness means living with a condition or a range of conditions that, while you look 'normal' to the observer, sap every last bit of energy you have doing the simplest tasks.  It means being called 'lazy', 'attention seeking', 'over-sensitive' and more when you try to explain that you just are not up to doing something.

I am lucky that my Husband understands what I am going through and, since he has witnessed the years of Doctor's appointments, tests and frustration, believes me.  

I am lucky that I have a huge online support group that I can lean on for understanding when the world doesn't at http://www.facebook.com/groups/GPACT/ 

Yep, even with everything going on I still feel lucky :)


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