Monday, August 22, 2011

Monday, August 22, 2011

Mood- quasi-weird
Health- SHDD (Same Health Different Day)


Today while talking with my Mother on the phone I breached the subject of my getting an NJ (Nasaljejunal) tube or a J-tube (jejunal) in the near future to combat my increasing issues with getting fluids in.

A Nasojejunal tube is a flexible tube that goes in through the nostril and down the throat, through the stomach and into the Jejunum or high up in the Small Intestine.  This tube is used to supply fluids, nutrients and medications directly to the Small Intestine, completely bypassing the Stomach. 

A J-Tube is a flexible tube that is placed through the abdominal wall into the Jejunum.  This one does not go through the nose but instead via an EGD (upper endoscopic scope) where they sedate you then pass a tube down your throat and into your stomach then feed it into the Jejunum where a light on the end is pressed to the Jejunum wall against towards your skin.  The surgeon then makes an incision and feeds the feeding tube in, tacking that loop of intestine to the abdominal wall and sewing the tube in place.

My Mother was a bit horrified but understands the need for something to be done and my increasing need for fluids and the medication for my heart conditions.

My only worry is that the Gastroenterology Physician I see on the second of September might not have a working knowledge of Gastric Motility disorders and I might have a very hard uphill battle in getting anything done. 

It is not like I can easily switch to a different doctor... it took 9 months to be seen by this doctor and since I am uninsured and seeing this doctor through the VCC program this is pretty much it.

I will be going armed with information and websites and can only hope that it is a good visit.

In other areas of my life, there is a Hurricane out there that seems to me eyeing my house with interest and I am afraid that the upcoming weekend is going to be a bad one... I hope not but so far the forecast models are not in my favor... we will see.

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