Health- troubled
Today was another day of waking in the morning, making a few calls then sleeping until around 8:30 PM and having pain wake me again.
It is also my husbands 42nd Birthday and the guilt of being too sick to do anything to make it special for him is weighing heavy right now.
I got some good news today in one of my calls, frustration in other calls and a lot of voicemail in the other calls.
My good news, the new Lawyer I have been talking to since my old Workman's Compensation Lawyer retired has decided to go on record as my new Lawyer and filed with the state to get me my permanent disability for my left ankle and the damage to my right knee from overuse, compensating for my left ankle. The statute of Limitations to file was August 4th and I thought that all hopes were gone, but this man (who was advising me free of charge and telling me what I needed to gather to file so if I could gather it in time he would take me on and if not he would not charge me) made it possible.
The frustrating calls are all to indoor locations trying to find a place that I can hold a canned food drive for G-PACT (www.g-pact.org) as part of their 10 year anniversary celebrations and Awareness event. The idea is that we (those participating) do a canned food drive (the food going to local Food Banks) collecting foods that we cannot eat because even though they are things we cannot eat due to our medical conditions we want to help those who are going hungry not due to the inability to eat but not being able to afford the foods. (more information at http://www.facebook.com/notes/g-pact-gastroparesis-patient-association-for-cures-and-treatments-inc/make-an-impact-with-g-pact-dtp-awareness-week-canned-food-drive/10150274282794337 ) The frustration stems from trying to find a location that is either available on Saturday, August 27, 2011 or that does not want to charge me money for use of the location. I cannot do an outdoor event (due to severe heat intolerance) and finding an indoor location is becoming a Monty Python style hunt for the Holy Grail and I feel like stepping outside and screaming "bring me a shrubbery!".
I am also working on getting ready to start a pretty major letter writing (email) campaign in support of the Caldwell family (see my post from July 21, 2011) and will soon be asking people to write in, telling about their experience with Gastroparesis and other Digestive Tract Paralysis conditions, especially those with young children with it, not only to show support to the family but also for their Lawyer to give to the courts showing how others across the nation and world also have these conditions. I will post the email address for this soon and am asking everyone who reads this (parents, yourself, family members and caregivers) to write in, even if just a few words of encouragement to the family. With the Dad deployed in Iraq right now they need all the support they can get.
As for me... my health is still in the rough (golf term) and I am struggling to fight through it all. I know that I need to go to the ER... I know that what I really need is a series of antibiotics to battle the raging infection in my jaw and sinus infection and dehydration, but I also know that what they will want to do (and will do) is run a few tests, give me an IV of saline, get the blood test back showing no elevated white blood count (my body does not respond to infection with fever or elevated white blood count, my immune response is almost non-existent) so they might give me a small bag of IV antibiotics then send me home with oral antibiotics that I will not be able to take. This is how it always is and I just don't see it happening any different but I will soon be to the point that I will have to simply risk the same old same old and hope for actual help.
So, today has been a lot of sleeping... many calls... some highs and lows and always pain, nausea and uncertainty but this is my life and I am going to always fight to see beyond the now and take steps to change my tomorrow for the better.
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