Wednesday, July 27, 2011

Mood- zoned
Health- iffy

I know that I could write about exactly what I do every day... but that would be a very boring repetition of "I got up... I stayed in bed unless I got up to go to the bathroom... I went to sleep".  Sometimes I do a few things... I may pull out the laptop and do some searches or work on my website (www.gastroparesis-awareness.com) or one of the two online stores I run (www.zazzle.com/syralia where all proceeds go to www.G-PACT.org and www.zazzle.com/bumperstickerstore that I run to try to raise money for medical treatment) and always have Facebook up in the background while doing all that.

Today I am working on things in the Bumper Sticker Store (considering I only make 40 cents for every one sold and only get a check when there is $25 in profit... umm... this is more of a hobby than something that actually makes money, lol) and finishing designs for the store I run for G-PACT.

Even though I do all of this from bed it is very tiring and I have to take frequent rests, but it gives me something to do and a way to give back.

Today has been another bad hydration day... I stopped pushing fluids so the pain is a little better but my constant companion, nausea, is still running strong.  

I heard back from the Lawyer that might take me on to get lifetime disability payments from Workman's compensation... my old Lawyer retired and right now I am trying to get everything I need done in less than a week... sighs.

The tire was fixed so we have a car again, so that is good news for today... but the budget for the US is not fixed... highs and lows.

I know that the GOP and Boehner want to cut the Affordable Care Act, saying "no one wants it" but obviously they do not speak for the tens of millions without insurance who DO want it and my biggest fear right now is that they will succeed in having it cut.  If that happens and my husband is able to find a job (still no success there, though we send out dozens of resumes a week) I will not have medical coverage and no way to get medical coverage and I am not alone in this.

Highs and lows... a roller coaster life...