Tuesday, July 12, 2011

Mood- trying to be positive
Health- challenged

Today is the 30th entry in the 365 day journey and so far is has been harder than I thought it would be to get online every day and write about how I am every day as well as pass on Awareness tidbits.

My health has been very challenging as of late and I did not foresee this when I decided to take this on, but this is what it is all about. I made plans to do this every day for one year and meeting that goal is hard... not because I can't think of things to write about (even though thinking has been hard lately) but because of the physical toll of simply pulling out the laptop and typing. Plans of any kind are risky at best when you are challenged with a chronic illness because you do not know from one minute to the next how you will be.

Today I have had it a little better... a few minutes here and there where the dizziness lifted and I felt a spurt of energy and I grasped those times with both hands and used my phone to check in on Facebook and connect with my Gastroparesis family and even managed to post a new item in the Zazzle store that I run with all profits going to www.G-PACT.org and even though I am trembling with exhaustion and having chills (considering the heat index was 110 today chills are weird) I consider today a victory.

To live with a Chronic Incurable Invisible Illness means that you have to take your victories where you can and celebrate them as major milestones in life... things that most take for granted we celebrate because to us they are a gift.

We celebrate when we go to a store and come home with enough energy to put the things away...

We celebrate when we go to the Doctor and they do not find a new thing wrong with us...

We celebrate when we wash our hair and do not have the drain clog from the hair that falls out...

We celebrate when we have one minute more energy than the day before...

We celebrate when we lay down to go to sleep and are able to without pain keeping us awake for hours...

We celebrate because to us these are hard fought victories... we got to experience a tiny slice of normal.

Tomorrow might not be a good day... and today was not a good day... but I had a few minutes of 'better' and I invite you to join me in a celebratory victory cry.